Welcome to our internationally recognised multidisciplinary course, which presents up-to-date evidence-based information on paediatric and adult management of Cystic Fibrosis (CF). Choose to attend our Onsite course in central London or learn from anywhere in the world with our Online course.
The Onsite course takes place in London twice a year, and aims to give delegates an enhanced confidence in the care of children and adults with CF. Over five days, delegates will learn via lectures, group work and workshops run by an international cohort of experts in the field.
Since 2012, practitioners all over the world have taken the Online course, many of whom benefit from learning at their own pace in a remote setting. The content on the Online learning portal replicates the onsite course themes with easily digestible work modules.
Our online End of Life course, created in partnership with the Cystic Fibrosis Trust, is now live. With two new courses – Physiotherapy for people with CF and Making a difficult diagnosis – coming soon.
Liz trained at St Thomas Hospital (London) as a Registered General Nurse. She worked at both the Royal Marsden and Royal Brompton Hospitals for many years. Her role at the Royal Brompton latterly was as a CF clinical nurse specialist with an interest in home care. She helped set up the home care service for both children and adults with CF. Since leaving clinical work in 2007 she has been involved in the administration of this course.
Susan is a consultant nurse and the Director of the Royal Brompton Hospital Adult CF Centre. She is both adult and paediatric trained and has worked with children and adults with CF since 1984. Following a Master’s degree, Susan completed a PhD at University College, London. Her areas of interest and research include adolescence, fertility and pregnancy, quality of life and end of life issues. She is involved nationally and internationally in various aspects of CF care.
Penny has worked at Royal Brompton & Harefield Hospitals since 1996 and is the Director of Allied Clinical Sciences & Patient Engagement. Professionally she is a physiotherapist and in her clinical career she specialised in cystic fibrosis for approximately 20 years, with a particular interest in complex disease, NIV, airway clearance and inhalation therapy, lecturing extensively both nationally and internationally.
Professional relevance
The course supports a number of consensus guidelines and standards of care including:
Preparation
We do not recommend any pre-course reading as the literature changes very quickly. However, please familiarise yourself with up-to-date articles in all areas. There are some useful websites listed below – look at the publication pages of these sites. We also provide a detailed course manual at the beginning of the course. Slides sets of each lecture can be downloaded for the Online course.
CF Trust (UK) www.cysticfibrosis.org.uk
CF Foundation (USA) www.cff.org
European CF Society www.ecfs.eu
Travel grants
There are a small number of travel grants available to delegates travelling from outside the UK each year which covers travel and accommodation. Please contact [email protected]
to check availability. The European Cystic Fibrosis Society (ECFS) also offer a Preceptorship to assist some students. Contact [email protected] for more details.
If you have any questions about the course or the
registration process, please get in touch.
Liz Holder, Course Administrator
6 Annandale Drive, Lower Bourne, Farnham, Surrey GU10 3JD
[email protected]
Managing the Care of Children and Adults
with Cystic Fibrosis is run by educateCF.
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